New support group

New support group

Posted on 16 November 2017 by Monika Reichelt

The Ayrshire Hospice is playing host to a new group supporting people living with a rare neurological condition in the Ayrshire region.  Launched in August 2017, the group provides people affected by Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) with the chance to chat to others in a similar situation, over a cup of tea and cake.

Meeting up every month in the hospice café, the informal get-togethers are hosted by volunteer and Ayr resident, Carol Johnston.

The group came about following an information event*, held at the Hospice on 14th June 2017 and was organised by the PSP Association, the charity dedicated to supporting people affected by PSP or CBD.

PSP and CBD are neurological conditions caused by the premature loss of nerve cells in certain parts of the brain. PSP may cause difficulties with balance, movement, vision, speech and swallowing, whilst cognitive problems are common in CBD and are often one of the first symptoms that families notice.

Like many other chronic conditions there is no cure for PSP or CBD. However many of the symptoms can be managed to help people achieve the best possible quality of life.

It is estimated that 30-40 people living in Ayrshire are affected by PSP or CBD.

We wish the new group and all those attending every success. If you would like to find out more about PSP or CBD or would like to attend the meetings, more information can be found on the PSPA website: www.pspassociation.org.uk  Alternatively contact 01327 322410 or psp@pspassociation.org.uk